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ML4: A Rare and Devastating Disease (2011) Online

ML4: A Rare and Devastating Disease (2011) Online
Original Title :
ML4: A Rare and Devastating Disease
Genre :
Movie / Documentary / Short / News
Year :
2011
Directror :
Adina Katz
Writer :
Adina Katz
Type :
Movie
Time :
11min
Rating :
6.1/10

Have you ever heard of ML4 (Mucolipidosis Type IV)? I never had, until it hit my family. My heart was broken when my cousin Caroline's daughter, Eden Rae, was diagnosed with this ... See full summary

ML4: A Rare and Devastating Disease (2011) Online

Have you ever heard of ML4 (Mucolipidosis Type IV)? I never had, until it hit my family. My heart was broken when my cousin Caroline's daughter, Eden Rae, was diagnosed with this devastating disease. It was even scarier to learn how little attention and funds ML4 receives due to the fact that it is rare. I couldn't leave it to the parents alone to raise money for research to find a cure. So I made this video. I'll do anything to help my family. These children will not survive if they are forgotten. Like a mother in the films states, 'I know that we hear 'It's so rare,' but when it happens to you, it's 100%.' These families are no less important then any other.